…many years ago, I was diagnosed with what used to be known as M.E., but is now known as Chronic Fatigue Syndrome. It was a difficult time. I had it full on for many months where I was essentially stuck in bed, and then a couple of years after where I was able to manage it by doing the bare minimum for university and a lot of support from my friends.
Over the last few years, my immune system has been a lot better. I still have to be a bit of a germophobe, but I can now suffer from a cold for just a few days instead of weeks, and can fight off a bug where I’ll feel under the weather but not taken down completely.
And I’m very, very grateful.
However. In the last week, I have been stupid tired. Like struggling not to fall asleep at work, falling asleep when I get home from doing anything. Stomach upsets when I try to push through fatigue. And today the horrible, horrible feeling of joint and muscle pain in my limbs (walking is not fun).
I know a few people are feeling a bit lousy just now – back to school bugs, change in seasons. And I’m hoping that’s all it is. But that little worrywart in the back of my mind is thinking this is an all too familiar feeling, and one that I haven’t had in a long time. So I’m praying that it’s just a passing thing, and by next week I’ll be telling myself off for being so silly to be worried!
And for those asking, the yellow and gold is going well. It’s become a bit of a joke with some colleagues at work where they ask where I’ve managed to sneak in my yellow/gold each day. It’s also led to some chats on social media with people who had no idea that childhood cancer research got so little funding because of its ‘rareness’. I’m posting a yellow/gold ‘selfie’ each day, it’s probably already boring as you see the same shoes, same nail polish, same tops over and over! But you can follow my very uninteresting instagram feed here. Nothing that I’m complaining about above compares to what too many kids (and their families) have gone through because of stinking cancer and the toxic treatments for it. So if my wearing yellow and gold gets people thinking and inspired to write to people who have the power to fund more research and support for families…I’ll continue to do it. I would like to do more but at the moment, not sure what I can do.