I had wanted to post this on August 31st, but it was only on the Truth 365 facebook page. Now it’s on YouTube. Already, I’m getting responses from my yellowness where people have told me they had always just assumed that childhood cancer gets tons of funding the same as breast cancer, lung cancer, prostate cancer etc.
There seems to be a lack of information on exactly how research gets funded here in the UK. I do know there is no government funding for DIPG, and I don’t think there was anything for Rhabdoid tumours either. To my knowledge, pretty much all the funding for research comes from very specialised charities like Love Oliver, Bloodwise, Sarcoma UK, The Katy Holmes Trust etc. I am very glad we’ve got the Teenage Cancer Trust too, which is a great organisation making such a difference not just for research, but raising awareness, education and supporting teens in adult hospitals.
You’ll probably find just about every charity has been started by a family who has lost a child to the disease they are researching. Because once you’re in it, and you discover how much is lacking and how much is needed…you can’t sit back and do nothing.
Hence….I’m wearing my yellow and gold!